An Accessible and Free Boat Ride

An Accessible and Free Boat Ride

Everyone needs a few hours to enjoy, to be out, to breathe fresh air.  A lot more thought has to go into an outing when Anthonyone is wheel chair bound.  Where can you go? How will you get there? Is it accessible? Can you navigate your wheel chair safely with ease?

Lori and I took Anthony for a boat ride yesterday, the Staten Island Ferry, Staten Island, New York.

00.Staten Island Ferry

It was a lovely cool morning, 62 degrees and sunny.  Anthony was never on a boat.  His eyes were wide with wonder; he was engaged, and at times smiled and shrieked with enjoyment.  It was a good time for all of us.

Although there was municipal parking available, we chose to find a parking spot on the street.  Two hours was all we needed to have a round trip ferry ride from Staten Island to New York City and back.  So we fed the meter and off we went.1.Water View ApproachThe streets were a bit hilly in the area, so a little muscle was needed to push, but Anthony is a light-weight so we managed.  Parking is adjacent to the Ferry entrance, next time we will park there.

The sidewalks were curb-cut for us to cross the street; and the elevator was available for us to enter the ferry terminal.  We tried to enter through to the ferry entrance and found the end sections to be wide enough for his wheel chair. 

Initially Lori was a bit concerned with the crowds, but she pushed Anthony in his wheel chair, and I stood by their side.  We were one of the first on the boat and found the best seat for him.  I was a bit surprised there were no designated areas for the disabled and elderly as there are on city buses.  This would be a good recommendation for us to offer the management of the ferry, NYC Department of Transportation.8.Nice to see Lori smile with Anthony

It was a wonderful outing.  We were able to show Anthony the Verrazano Bridge, the glistening water, the boats passing, and the approaching New York City skyline.  When the captain blew the horn as we initially departed, Anthony closed his eyes and was a bit frightened.  On the return trip, when the horn blew, he was fine.  Our little guy is experiencing life and growing.  It’s a wonderful thing. 

5.So much to discover

    This is an accessible day trip we in New York City can take with our loved ones.

 

Mobility Awareness – Let’s begin to set some goals

Let us together achieve our initiative by attainable setting goals

Special Needs Lifeline is to help all touched by a disability to connect and create positive change. Our initiative is to create mobility awareness; and more importantly improve accessibility in NYC.

                         

Let us together achieve our initiative by establishing our goals.

Join us and let us know your wishes for mobility improvement.

 

 

Enjoying an accessible day in Staten Island, New York

August 4th 2013, Staten Island, New York:  78°F and clear with low humidity.  This is as good as it gets in New York.  A beautiful day to spend a few hours doing something different; something engaging; something to expand the mind of our very special boy, Anthony.

Staten Island Children’s Museum is accessible to all.  So it was a perfect fit. I’ve been there many times before when my daughter Christina was a child, and I remember her enjoying the museum and the grounds.  So off we went.  My plan with his Mom Lori was to spend just an hour or so.  Just enough time to break up the day with a cultural mind-expanding event. 

When we entered the museum I asked the lovely young woman at the front desk if there was a section for the special needs community.  Her reply, “the entire museum is open to all.”  I thought about that, and understood there were no distinguishing areas; just children of all abilities playing together. I like that.  I think it’s up to us as adults to help our children feel comfortable with each other.  The comfort level comes from us first.  Our children feel it.

 We were able to navigate very well throughout the museum and able to get to the different floors with two elevator banks.  It was the first time Anthony was there, so it was a day of looking, watching, and absorbing.  He enjoyed it.  We all did.  Next visit we’ll do more of the interactive activities.  We will be back.

The Staten Island Children’s Museum, 1000 Richmond Terrace, Staten Island, NY 10301, Snug Harbor Cultural Center

 

 The Staten Island Children’s Museum appeals to the intrepid explorer in every child.  Interactive exhibitions and creative workshops offer plenty of opportunities for hands-on, first hand experiences that nurture children’s natural curiosity and creativity. Visits to the museum launch children on a voyage of discovery – about themselves and the world around them.   

View the museum’s full guide here:   http://www.statenislandkids.org/pdf/A4A%20Guide.pdf

Our resource map will give you directions to the museum: http://www.specialneedslifeline.org/map/

We had a wonderful time.

Camille Gallo

Always feel free to leave your comments to share with the community.

 

Center for Disability Rights: In the News

When the Americans with Disabilities Act became a law in 1990, the landscape of the civil rights movement broadly unfolded. Disability rights organizations steadily gathered momentum across the country. Local advocacy groups, comprised of both able-bodied and disabled volunteers, united to prescribe the essence of ADA legislation throughout their own communities. These groups supported improved conditions for independent living, enhanced access to medical and social services, and equal protection from violations of civil liberty. The Center for Disability Rights, a non-profit organization based in Rochester, NY, has been aggressively campaigning on behalf of the disabled community even before the ink was dry on the pages of the ADA. On August 16, I took the opportunity to attend an ADA compliance training session for small businesses held at the CDR facilities.

For 60 minutes, law fellow Stephanie Woodward and chief operating officer Chris Hilderbrant persuasively articulated the common ADA pitfalls that unwary businesses often fail to recognize. In accordance with the CDR’s customary diplomacy, Ms. Woodward and Mr. Hillderbrant thanked the members of the audience for their attention, and lightheartedly guaranteed impunity from pending legal action. They emphasized critical ADA guidelines for HR personnel, fundamental disability etiquette (punctuated with amusing and instructive real-life anecdotes), and extensive resources for further information on provisional compliance.

I learned a great deal about how businesses must distinguish the “essential functions” of a particular job, forestalling any potential accusations of discrimination. Additionally, the presenters elaborated on providing “reasonable accomodations” and the corresponding tax credits and deductions available as incentives to small business proprietors, including the Disabled Access Credit, Barrier Removal Tax Deduction, and Work Opportunity Credit. Ms. Woodward and Mr. Hilderbrant patiently answered every question alongside a sign-language interpreter. I am grateful to the staff of the CDR for facilitating an important discussion about ADA compliance, and I thank them for extending the invitation to participate.

For more information on the Center for Disability Rights, please visit their website at http://www.cdrnys.org.

Beauty, Culture, and Accessible

i Nov 14th 1 Comment by

The principle of universal design addresses the attention of the diverse needs of all people.  This will lead to well-designed buildings that seamlessly integrate thoughtful solutions and appropriate materials for those not specifically for but including the special needs community. By designing for a diverse population, universal designers integrate usability by everyone into their work on a routine basis.  This approach leads to greater inclusion for many groups often neglected in the design process, (e.g., children, the elderly, people of small stature, frail people, etc. (Universal Design New York, Mayor’s Office for People with Disabilities)

I visited the Metropolitan Museum of Art in New York City with a couple of dear friends.  It was such a special day.  As an interior design contractor, I found it to be an inspiring and enchanting venue of tremendous beauty.  It is a place for all to enjoy.  The facility is accessible and features exhibits that touch the heart, expand the mind, and enrich the soul.  I highly recommend it.   Let us view this as an example of what is available for all to enjoy.  What programs, for visitors with learning and developmental disabilities, can you think of to bring to your community (big or small) that is fully accessible?

NYC - Metropolitan Museum of Art: Armor for Man and Horse

Metropolitan Museum of Art  Discoveries-Power and Protection: A Look at Armor

The Metropolitan Museum of Art invites you to Discoveries, a Sunday program for adults and children with developmental and/or learning disabilities, together with friends and family members.  Each Discoveries workshop focuses on a theme and includes a gallery tour followed by a related art activity in the studio. (Free, but reservations are required)

http://www.metmuseum.org/visit/accessibility
http://www.flickriver.com/photos/wallyg/2586185176/
Camille Gallo

Beautiful, Comfortable, Accessible

i Oct 23rd No Comments by

Living comfortably, what is accessible for all…

Universal design (def) Universal design represents an evolution toward the understanding that we must not view individuals with disabilities as separate and different, but as an inherent part of our extraordinary diversity.  Universal design is an approach to the development of “products and environments that can be used effectively by all people, to the greatest extent possible, without the need for adaptation or specialized design” (North Carolina State University, 1997). It is an inclusive process aimed at enabling all of us to experience the full benefits of the products and environments around us regardless of our ages, sizes or abilities.(Universal Design New York,  Mayor’s Office for People with Disabilities)

I have been in the design industry for over 25 years.  I’ve seen the frivolousness of high-end style, I’ve worked in warehouse debris, and everything in between in premier properties in NYC .  I’ve lived through hard times and confusing times.  I love my work as an interior design contractor. I always knew somehow, someway, I could help make this world a more beautiful place to live, for all of us to live.  You see I do believe we are one – all of us – capable of all things, in different ways.

What can I contribute, in my way, with my capabilities? I do want to make a difference.  Yet at times I struggle to get sure footed… I have consulted with disability experts, and they have made their recommendations.

Join me in my journey as we identify what is available and identify what we need through “Universal Design.”  

I caught the warmth of the sun today. It was for just a moment, and then it  turned gray.  I looked up and the clouds were a lovely white. Have you noticed warmth of the sun? This is something we can all share; on your own, with each other.  Feel the warmth, see the vastness of the universe; know it does exist.  Let us begin here…

BENCHES AT MADISON SQUARE PARK,  NYC

http://nyc2dailyphoto.blogspot.com/2008/11/benches-at-madison-square-park.html

 

Camille Gallo, IGT Design & Distribution

 

Center for Disability Rights: In the News

i Aug 17th 1 Comment by

When the Americans with Disabilities Act became a law in 1990, the landscape of the civil rights movement broadly unfolded. Disability rights organizations steadily gathered momentum across the country. Local advocacy groups, comprised of both able-bodied and disabled volunteers, united to prescribe the essence of ADA legislation throughout their own communities. These groups supported improved conditions for independent living, enhanced access to medical and social services, and equal protection from violations of civil liberty. The Center for Disability Rights, a non-profit organization based in Rochester, NY, has been aggressively campaigning on behalf of the disabled community even before the ink was dry on the pages of the ADA. On August 16, I took the opportunity to attend an ADA compliance training session for small businesses held at the CDR facilities.

For 60 minutes, law fellow Stephanie Woodward and chief operating officer Chris Hilderbrant persuasively articulated the common ADA pitfalls that unwary businesses often fail to recognize. In accordance with the CDR’s customary diplomacy, Ms. Woodward and Mr. Hillderbrant thanked the members of the audience for their attention, and lightheartedly guaranteed impunity from pending legal action. They emphasized critical ADA guidelines for HR personnel, fundamental disability etiquette (punctuated with amusing and instructive real-life anecdotes), and extensive resources for further information on provisional compliance.

I learned a great deal about how businesses must distinguish the “essential functions” of a particular job, forestalling any potential accusations of discrimination. Additionally, the presenters elaborated on providing “reasonable accomodations” and the corresponding tax credits and deductions available as incentives to small business proprietors, including the Disabled Access Credit, Barrier Removal Tax Deduction, and Work Opportunity Credit. Ms. Woodward and Mr. Hilderbrant patiently answered every question alongside a sign-language interpreter. I am grateful to the staff of the CDR for facilitating an important discussion about ADA compliance, and I thank them for extending the invitation to participate.

For more information on the Center for Disability Rights, please visit their website at http://www.cdrnys.org.

Creating positive change… Quick Survey for our members! Your response is greatly appreciated!

i Aug 16th 1 Comment by

dear member:

Just a friendly reminder that Special Needs Lifeline is here for you and your family. We want each and every member to know that Special Needs Lifeline is your support and network for all touched by a disability. Looking forward to hearing from you. Please take the following survey https://www.surveymonkey.com/s/SNLC so that special needs lifeline can further accommodate our members.

The Dignity of Risk: Special Needs Lifeline Question of the Week

i Aug 6th 1 Comment by

Once again, the summer Olympics is captivating audiences around the world. And once, again the quadrennial competition is entangled in controversy. We are all familiar with the routine failed drug tests, and accusations of corruption at the judges table. This year, however, we have witnessed a dispute unlike any other- the participation of Oscar Pistorious.

Oscar Pistorious was born with fibular hemimelia, the absence of the long leg bones. Before turning one, both of his legs were amputated below the knee. Yet in spite of the debilitating surgery, nobody could ever categorize Pistorious as disabled. He refused to be labeled, and he refused to be caught.

Oscar Pistorious is universally recognized as “the fastest man on no legs.”

In 2008, Pistorious tried unsuccessfully to represent South Africa (his home country) in the individual 400 meter race. A mere 0.7 seconds thwarted his attempt to qualify, and to subsequently become the first amputee to compete in the history of games. Correspondingly, Pistorious set multiple world records in the 2008 Summer Paralympics in Beijing, China.

Pistorious wears carbon-fiber prosthetics called “Cheetah Flex-Feet” Oscar’s desire to compete on the international stage prompted several rule changes, and compelled numerous experiments to determine if the artificial limbs imposed an unfair advantage over able-bodied sprinters. Every test indicated that Pistorious raced without any competitive edge, and he qualified on his own merit for the official 2012 games in London.

People with disabilities are often denied “the dignity of risk.” This signifies an attempt to discourage, albeit with the best of intentions, people with disabilities from striving to accomplish seemingly unrealistic goals. To never know if you could have succeeded because you were deprived of a chance to fail- that is the moral compromise personified by the dignity of risk.

Gold medals cannot adequately measure the extent of Pistorious’ accomplishments. His journey of self-discovery advances at every starting line. He has exercised his dignity of risk.

Question of the Week: What does “dignity of risk” mean to you? Can you think of other examples that demonstrate dignity of risk? Would it make sense to characterize Oscar Pistorious as disabled?

We encourage you to reply to the question of the week. Please be respectful of the opinions of our fellow community members. There is no right or wrong answer. Reflecting on challenging questions will help keep us informed.

Some Good News: Special Needs Lifeline Question of the Week

i Jul 29th 1 Comment by

Back in February, in a post entitled The Power of Nurturing, I mentioned how easily disability rights advocates can sink into pessimistic quicksand. Full-scale change does not materialize overnight; and gradual, incremental victories might not feel like victories at all. Until we take a deep breath, take a step back, and witness for ourselves the awe-inspiring transformation developing before our very eyes.

I want to share some good news with you. Follow me across the span of the United States from New York to California. I will introduce you to a little league superstar and the extraordinary mother of a quadriplegic son. Then we will journey over 7,000 miles to Kenya to meet a beneficent man raising funds and awareness for spinal cord injuries.

Evan Sussmann has participated in his local Brewster, NY little league for the past four years. He has fostered close friendships with his teammates, and he has earnestly attended every game. The fact that Evan has cerebral palsy is irrelevant to his baseball team. Unfortunately, league officials had considered that Evan would be a liability from his regular spot in the dugout, and they prohibited his appearance for a regional playoff game. Parents, coaches, and players quickly organized around Evan and explained the circumstances to league administrators. Consequently, Evan was there to support his team, prepared with a slew of high-fives and moral support.

Fourteen years ago, Patty Lance answered a phone call every parent dreads- her son had suffered a terrible accident and she needed to fly to California immediately. Geoff, Patty’s son, was knocked unconscious while he was surfing. He withstood severe cognitive brain damage, paralysis, and full cardiac arrest. From that moment forward, Patty accelerated on the road to her son’s recovery. She researched the foremost medical treatments and therapies. She committed herself to providing the optimal care for son, without abandoning her own identity while she continued her real-estate business. As Geoff grew stronger with each excruciating day, both physically and mentally, Patty’s resolve grew alongside him. Today, Geoff continues a prosperous, independent life. Patty and her son tightly embrace their faith- the belief that any obstacle can be overcome.

According to the website Disabled World, an estimated 60-80 million Africans (10% of the total population) live with a disability and approximately 20% of impoverished Africans are disabled. Those frightening statistics are no match for Zackary Kimotho, who has initiated an awareness raising 2,500 mile campaign from Nairobi to Cape Town. In a wheelchair. Zackary was the victim of an attempted carjacking in 2004, resulting in his becoming a paraplegic. His promising career as a veterinarian was abridged, and $3,000 were squandered on a witch doctor who promised Zack he would regain the ability to walk. In spite of the alternative remedy falling short, Zackary discovered a renewed purpose in life. Now, he is considered a hero by the residents of every village he arrives at en route to Cape Town.

Question of the Week: Help us spread some good news. Tell us about someone or something inspiring in your life. What instills good inside of you, and how do you try to instill that good in others?

We encourage you to reply to the question of the week. Please be respectful of the opinions of our fellow community members. There is no right or wrong answer. Reflecting on challenging questions will help keep us informed.

References

Dolan, J. (2012, July 26). Boy with cerebral palsy allowed to join baseball team in dugout. Abclocal.go.com.

Brenoff, A. (2012, July 4). Patty Lance: Realtor Turns Tragedy into Success. The Huffington Post.

Gettleman, J. (2012, June 29). On the Road, Cheers for a Kenyan and His Cause. The New York Times.